CDC Anticipated: Understanding Clinical Data to Inform Surveillance of Children with Fetal Alcohol Spectrum Disorders (non-research)

Sponsor Deadline: 

Aug 30, 2022


Centers for Disease Control and Prevention

UI Contact: 

CDC Forecasted:  Understanding Clinical Data and Pathways through Care to Inform Surveillance of Children with FASD Fetal Alcohol Spectrum Disorders
Anticipated posting date: July 01, 2022

CDC solicitations are usually limited to one application per institution.  
Please refer to this link on the UIowa Limited Submissions process

Fetal Alcohol Spectrum Disorders (FASDs) are a group of overlapping diagnoses that can occur in a person who was prenatally exposed to alcohol. Surveillance of children with FASDs is essential for understanding the magnitude of these conditions in the population, as well as understanding the associated needs, healthcare utilization, and comorbidities. Information from existing electronic health record data systems (including electronic medical records and electronic healthcare claims) are a potential source of surveillance data, but a better understanding of these data and associated quality are needed. This non-research surveillance NOFO will work with sites that evaluate and diagnose children with FASDs to: (1) understand the documentation of FASD diagnosis-related information, including information about prenatal alcohol exposure, in the electronic health record; (2) describe the pathways and processes for an FASD diagnosis, including the sequence of healthcare encounters that children experience before receiving an FASD diagnosis; and (3) describe the characteristics of children within these systems.