Rare Disease Research Grant Program - LOI

Sponsor Deadline: 

Jun 18, 2019

Letter of Intent Deadline: 

Jun 18, 2019

Sponsor: 

National Organization for Rare Disorders NORD

UI Contact: 

NORD's Rare Disease Research Grant Program http://rarediseases.org/research is accepting proposals for scientific and/or clinical research to support the study of eight rare diseases. The initial application deadline is June 18, 2019.  

  • Alveolar Capillary Dysplasia with Misalignment of the Pulmonary Veins (ACD/MPV) — One grant of up to $50,000 U.S.
  • Appendix Cancer and Pseudomyxoma Peritonei (PMP) — Two grants of up to a combined total of $100,000 U.S.
  • Autoimmune Polyglandular Syndrome Type 1 (APS-1) — One grant of up to $100,000 U.S.
  • Biliary Atresia — Two grants of up to a combined total of $190,500 U.S.
  • Malonic Aciduria — One grant of up to $52,000 U.S.
  • Neuroendocrine Cell Hyperplasia of Infancy (NEHI) — One grant of up to $30,000 U.S.
  • New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) — Two grants of up to a combined total of $100,000 U.S.
  • Primary Orthostatic Tremor — One grant of up to $42,500 U.S.

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